Monday, March 10, 2014

Health Update 3/10/14



Everyone,



I am sending this because I know many are wanting to hear how my doctor appointment went today as we were hoping to finally have some answers. I cannot even begin to tell you how disappointing the day has been. The doctor basically said "Well we saw pretty much the same thing as last time - inflammation, white cells, puss and dead kidney tissue. Something is eating up your kidneys but we don't know what it is." She went on to say that at this point she didn't feel she had anything to offer us and had spoken with our other doctor who felt we needed to see an infectious disease specialist. She said "if when everyone is done they are saying we don't know what it is then I think we should go in and take a chunk but I think I would want to consider doing an open surgery so I could really see and feel what I was doing and I don't want to put you through that pain or risk unless we need to." She did put me on antibiotics (I think just because she could see how frustrated I was) but said she is not hopeful they will do any good but they won't hurt me. She said she had circulated my scan around to quite a few people and everyone is saying they have never seen anything like this before. I asked her about what she thought this meant long term and she said "I have no idea because I don't know what it is but we need to find it and stop it." SO both the doctors I have been seeing are stepping out for now and I am to call my general practitioner tomorrow to set up an appointment with an infectious disease doctor. More waiting, more tests, more not knowing. I am disappointed, frustrated and scared about my future health if we don't get this under control. I am thankful to be surrounded by my family and friends and to be upheld by so many who are praying. Last night as I lay shivering and having one of my chills and fever spells, I covered myself with a beautiful quilt made by some dear friends from my home church in Elmira. I am overwhelmed by the concern and care that has been shown to us and we appreciate you all so much. We continue to live one day at a time and will keep you in the loop. I will try to send out an update soon with news from Greece. We are in contact with the team there and Kent spent some time on the phone this week with Christy our team mate who is leading the team in his absence. Things are going well but of course they are anxious for us to return. For now we both feel that Kent needs to be here until we see where this goes so we are trusting the Lord to take care of everything else.

We love you all.

Myrna (and Kent)

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