Health Update

Everyone,



It's been a emotional roller coaster the last couple of weeks. I am healing from my surgery. Today I got the staples out of my incision which runs from my navel to my back. I was pretty uncomfortable at first but am doing pretty well now. Last week the infectious disease doctor called us and said he thought maybe I had a disease called Wagners so he wanted me to see a kidney specialist. The kidney doc called and scheduled me for the very next day. I looked up Wagners and was NOT encouraged by what I read. It is not a disease you want to have. Kent and I decided not to say anything to our family until after we went in so as not to worry people unnecessarily but we were both pretty stressed out. As soon as the doctor walked in and sat down she said "You do NOT have Wagners" WHAT a relief! She spent and hour and a half with us and said she really wanted to try to work with the other doctors to get to the bottom of this. We left feeling a bit encouraged. While at her office my blood pressure dropped quite low and I had to drink some hot broth that I am convinced they made from dead horse's hooves - at least that is what it smelled and tasted like. I was exhausted by the time I got home.



They next day my rheumatologist called to say she wanted to see me and could I come in the next day. I asked if I could wait a while because I wasn't really feeling up to it. They agreed. Within a hour or two my kidney doctor was on the phone saying that whether I felt like it or not I needed to go in fact she wished I had been able to go even earlier because my liver toxin levels had risen even more. Once again we were a bit frightened and wondering what this would mean. When we got in there the rheumatologist apologized for making me come in and said she thought the toxin level was because of the fungal medication and she would talk to the infectious disease doctor about it. She had wanted to see me because she assumed since I am off all my arthritis drugs that my joints would be swollen and painful. Instead my arthritis has never been better it is like I don't even have it. Once again we left feeling better than when we came in.



This week we got another call from the infectious disease doctor. He said "I am sorry to tell you this but we are at the end of the line with what we can do. All the tests are back and we can find nothing that is causing this." He said he had asked the kidney doctor to look at Wagners disease again, the pathologist to look at lymphoma again and had asked another infectious disease doctor to review the files. He said if these all come back negative - which they did today - then we are left with two things 1) I am starting on a very high dose of two different antibiotics in the hopes that it might kill whatever it is even if they can't find it - he said "This is a complete Hail Mary - we are just shooting in the dark and hoping we hit something" We will do a scan in 4-6 weeks to see what has happened. 2) I need to get seen by a research facility - in this case we are applying to Oregon Health and Science University. These doctors are doing research on diseases and things that the average doctor doesn't see so it is possible they will find something the other doctors have missed.



I asked the doctor if they didn't find it if this would just eat my kidneys completely and he said "That is my fear but I don't know how to stop it". Kent and I were both feeling pretty emotional about all this because of not knowing what that meant for our lives and our future or even my chances of dying. However today both our urologist and the infectious disease doctor told us that they don't expect this to kill me - their fear is that it would eat my kidneys to where I would need dialysis and perhaps a kidney transplant but that I would survive. We are both feeling a bit more hopeful and like we can face whatever comes as long as we are doing it together.



Please pray for these new doctors who are looking at my case with fresh eyes. Pray that the antibiotics would work. Pray for continued healing from the surgery and continued peace for Kent and I as we move forward. Thank you for your unfailing love and support.



Kent and Myrna Morley
Tripoleos 76
Elliniko 16777
Athens Greece
011 30 210 96 38 625
backhoeboy1@gmail.com
http://kent-uniquelymorley.blogspot.com
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